Autism Conference

Yesterday I attended my first autism conference. I’ve gone to workshops and support group meetings, but never a large event. It was three days, but I could only make it to one. I chose the final day because John Elder Robison was a presenter. Yes, that means I missed the iconic Temple Grandin, but I was not disappointed. Not in Mr. Robison anyway. He redeemed the emotions and interest that the first speaker lacked/lost.
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Back to the beginning… I started off early and drove to The University of West Florida, just me and my iPod with the “Wonder Rock” playlist on shuffle. (Translation: lots of Europe, Boston, and Mitch Malloy with a sprinkling of other assorted rockers prominently from the 1970s-1990s.) The campus—sprawling with space between buildings and acres of natural landscape left in tack—was lovely and the fact that their logo has a nautilus was, in my mind, a nod of serendipity to my adventure.

Mr. Robison was hilarious and thought provoking. His passion for sharing his stories (Hello, three books!) shined as well as his social quirks—like pacing around the stage when his family was doing their Q&A. And his family was great, too! Lots of insight and they answered a question for me: What’s the value of getting an Asperger’s diagnosis as an adult? (Which now, with the new DSM-V manual, would be “autism” since the Asperger’s label was removed and it doesn’t differentiate between the levels on the spectrum.)
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I’m leaning toward Mr. Robison’ practical response, though greater peer acceptance and an official credential would be nice. The liability/cost of medical/life insurance when you are diagnosed is greater. Let’s hear it for logical thinkers!

One tool that Mr. Robison recommended was an Autism-Spectrum Quotient test that was posted by Wired magazine many years back. I took it and tested forty-two. No surprise to me. My husband scored seventeen—we’re a case study in opposites attract.

The conference was educational/life affirming. Lots of Aspies to hear from and several things were reinforced to me about what I can do to encourage my ASD son in his growth. What, you ask? Never give up because learning and development continues into adulthood and let him follow his passions/obsessions. Plus, I got two books autographed but I was too shy to ask for a photo.

I’ll diffidently go to another event where any of the Robisons are featured speakers. The day was well spent but I’m curious to see how my friends score on the AQ test. Leave your number in the comments if you’re feeling brave.

World Autism Day

April is Autism Awareness Month and April 2 is World Autism Day. While not everyone in the autism community can agree on theories of cause, treatment, etc, I think everyone believes that knowledge and understanding is a good thing.

Education is a good thing, no matter if you are looking at the autism spectrum as in insider or outsider. Feel free to share links to sites, quotes, books, and other tidbits that have inspired and helped you and your loved ones. My previous thoughts on the topic can be found under the category “autism” in the tool bar on the right side of this page.

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Three Confessions

Confession #1: I have a lot of books.
Confession #2: I have a lot of bookshelves (but I could always use more.)
Confession #3: I keep my most treasured books behind closed doors.

I first started hiding my books after my eldest child started to “wear out” his own books. Lift-the-flap books with no flaps to lift. Using books as bridges, literally walking on them across the floor, was a favorite activity. And with his books, spines were optional. I feared for my beloved books, as well as my husband’s collection.

Our favorite books went from the top shelves—he could scale the bookshelves—to high levels inside cabinets. I could hear the cabinet doors opening, but I didn’t always hear him at the bookcases until it was too late.

In the past three years that I’ve been homeschooling, the book population has hit overdrive.

The main wall of books--about a third of what we have.

The main wall of books–about a third of what we have.

The non-fiction area has doubled and the sum of the middle grade novels that my oldest son reads every night is greater than anything I ever held as the lone reader of them. My youngest has a two shelf bookcase of picture books and all things pink while the middle child hoards The Magic Tree House and military history.
Last year I wrote a post about my oldest turning into a reader and he hasn’t slowed down. The other night, when he came looking for another book amid the post holiday explosion, I realized he hasn’t read Bridge to Terabithia or A Wrinkle in Time. All of the Katherine Paterson, Madeleine L’Engle, Laurie Halse Anderson, Terry Brooks, and Orson Scott Card books are behind closed doors. Not to mention Narnia, Green Gables, Hogwarts, and The Shire.
Parenting fail!
So, my goal this month—hopefully this week—is to get these books out and into circulation among my household. No more restricted section in the family library. I’ll document this effort with photos, so stayed tuned!

In Which I’m Nerdy, Again

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Today on The Nerdy Book Club, they are hosting my “Top Ten Books Featuring Autism Spectrum Disorder.” If you love children’s/teen literature, teaching, libraries, or anything related to those topics, be sure to follow their blog. Those nerdy people post daily and are full of inspiration and insight.

http://nerdybookclub.wordpress.com/2013/01/12/top-ten-books-featuring-autism-spectrum-disorders-by-carrie-cox/

Did you miss my first post with the group? Find it here:
http://nerdybookclub.wordpress.com/2012/11/03/top-ten-laurie-halse-anderson-books-by-carrie-cox/

Happy 2013, World!

fireworksAnd Happy 100th Blog Post to me!

Four years of blogging, and I finally met THE milestone. Just the other night my 2012 Stats were revealed—I’ve had slow but steady improvements. I believe more networking, both locally and online, have a lot to do with it. Plus switching to Word Press from Blogger. Maybe the new dot com. Or the fact that there is now a “Carrie Cox” publishing very much adult books over on Amazon.

But who really knows?

I write to process life and share with others. The fact that people read what I write—or at least click the link—is a bonus. I’ve written about my kidlets, my reading habits, homeschooling, autism, and a bit about current events. This past week I’ve posted a few excerpts from CORRODED, the novel I’m querying publishers about. It’s been great to revisit Mary, Ben and the others and I hope to bring them back to the forefront of the blog when the time comes to publish the book. (No news, yet.)

Now, back to work on my historical—FORTITUDE. Check out my Pinterest page about this gem at http://pinterest.com/wonderwegian/fortitude/

You’ve stopped by so please share your comments. What would you like to read on here in 2013?

CORRODED: Meet Ben

          I tentatively reached over and pulled Ben’s right hand toward my face. With my index finger, I flipped over his medical bracelet and leaned in to read the inscription.

            “It’s titanium. I got it for Christmas because my old one broke.” A look of defeat fell over his face. “How long have you known?”

            “My parents told me this weekend, but they said you have Asperger’s. This says ‘Autism.’”

            We resumed walking to disperse our nervous energy, Ben re-pocketing his hands.

            “Not everyone knows what Asperger’s Syndrome is. It’s easier just to put ‘Autism’ on something like that. Besides, in a real emergency, I’m liable to completely freak out like anyone else on the spectrum.”     Autism superpower

            “You’re not going to have a meltdown or something right now, are you? I mean because you’re off schedule and all. My little cousin Zak has autism. I remember him screaming one time because I ate the last Popsicle. I think he hates me for that.”

            “Doubtful. It’s all the same spectrum, but hate isn’t something we usually deal with. Pain, fear, discomfort…. I didn’t start talking until I was five, but I could read before I turned three. Once I started talking, my mom couldn’t shut me up. I had so much information racing around my head. I’d recite the dates of the battles from the Revolutionary War until I fell asleep at night. Actually, I still do.”

            I laughed at his admission. “So, you’ve been Mr. History since you were a preschooler?”

            “Yeah, that’s me. A billion and one things about America and you’ll hear them all if you get me going.”

            “Then remind me not to. And try not to freak out.”

See http://pinterest.com/wonderwegian/corroded/  for more images and links.

An Autism Literary Journey

It’s no secret that my oldest child is on the autism spectrum (check out posts under the “Autism” category) but this summer we passed a milestone: a READING benchmark.

Call me a bad parent, but one of my only questions for the neurologist who “helped” diagnosis my son with PDD-NOS was “Will he ever learn to read?”  My sweet son didn’t sit still long enough for me to read more than a page or two of a picture book—he was more interested in lining up his video cassettes.

Thankfully, he did learn to read and in the past year he’s been reading for pleasure. Every night, he’d read aloud to himself from The Many Adventures of Winnie-the-Pooh, The Complete Tales of Beatrix Potter or the Curious George cannon. Over and over. I was happy to see him reading, and had to brush tears from my cheeks the first few times I caught his little brother and sister huddled around him in bed after lights out to listen to the stories, but I didn’t want him stimming on the same stories.

When his fourteenth birthday approached this July, I decided to formerly introduce him to my bookshelves which he passed dozens of times a day. I pointed out a section of middle grade novels and let him pick one of the E.B. White books since he was familiar with the characters from their movie reincarnations. He went through Charlotte’s Web, Stuart Little, and The Trumpet of the Swan the first week. He plowed through the complete Bunnicula series by James Howe and several Newbery books like Mrs. Frisby and the Rats of NIMH, Shiloh, The Whipping Boy, and Sarah, Plain and Tall. He even read Hemingway’s The Old Man and the Sea.

SIXTY books in two months! I gave him a journal when he began his novel reading journey and in it he draws the cover of each book he completes. Now, I need to go back to the bookstore and buy another journal.

I’ve always had a major children’s book collection happening but last week I started fearing for my home library. He’d moved from the lower middle grade novel—typically for 7-10 year olds—bookshelves to my personal favorites—the ten and up category.

So, we began this week with a trip to our local library branch like a good homeschool family. Usually, my guy would only look at the DVDs and a book or two if pressed. This time, I showed him the children’s fiction section and he started putting Roald Dahl and Beverly Cleary books in our bag. I’m majorly excited but a little sad that he’s got dibs on Lair & Spy by Rebecca Stead before me.

Creativity in all Forms

I’ve focused on creative projects—other than writing—during July. Part of the reason was a house full of kids, but the other was to reset my thinking between novels. It’s been close to five months since I’ve written anything on my historical project, FORTITUDE, and I needed to distance myself from CORRODED.

The main productivity has been in the yarn department: knitting like crazy for my ever growing list of people who want gauntlets (fingerless gloves.) If you check out my Pinterest board for knitting at http://pinterest.com/wonderwegian/yarntastic-knits/ you can see the pattern I’m using as a reference.

Last week I did dabble in knitting Barbie bathing suits, but I’ll save myself the humiliation of posting a picture of them. They are more like long tube tops. Enough said.

The past two days have been all about miniatures. My fourteen year old son (on the autism spectrum) got a dollhouse kit for his birthday.

He’s wanted a dollhouse all year—and we’re cool with that. I think it has something to do with Beatrix Potter’s The Tale of Two Bad Mice, but I already let him know he can’t smash things up.

 

 

 

So, with the help of my wonderful guy, we built the house.

His favorite parts were choosing the paint colors at the store and then gluing on all the shingles. And yes, he loves “Bear in the Big Blue House” if you couldn’t tell.

 

Now I’m back to writing—just in time for Laurie Halse Anderson’s Write Fifteen Minutes a Day Challenge in August. Follow her blog here: www.madwomanintheforest.com/blog for daily tidbits and encouragement for the next thirty days.

 

P.S. I haven’t been posting what I’m reading here because I’ve been doing so at www.facebook.com/authorcarriecox so be sure to check there for more regular updates.

Soggy Blog

Yawn. It’s close to bedtime but I haven’t written anything more than a few e-mails and a FaceBook status today. The need to put thoughts into words, to feel the letters and spaces flow effortlessly through my finger tips, was too difficult to ignore.
Sometimes I feel the need to write on paper. The mesh of print/cursive—that I was always corrected by the students for using when substituting in elementary school—is therapeutic some days. Especially when using one of my favorite Profile Paper Mate pens. The act of moving the pen over paper is art itself.
But other times, like tonight, I need the soft music of the keyboard—the gentle sound created is just enough to fill the void on a finally quiet night. Seeing the words fill the screen allows me to feel that I’m accomplishing something, even though I cheat and use a size 14 font.
It’s been a long day. From standing in line at the local Wal-Mart Supercenter for 30 minutes because their debit/check/credit card server was down to having to rush to a pediatrician appointment for the princess (no worries, it was her two year check-up) to dealing with the oldest child’s meltdown (and not backing down on the repercussions.) Yes, it’s been a long day!
And why am I blabbing about nothing? I suppose it’s about writing and life, as usual, but there is a deeper meaning behind this blog.
PROCRASTINATION.
Plain and simple. I’m avoiding my W.I.P. because I’ve spent over a month working on a short story. And this past week I’ve added a non-fiction magazine article to the mix so Corroded has been wilting in the heat of the southern summer. Well, hopefully its smoldering, but I feel so removed from it that I can’t help but think it’s less than it was… that I’m not able to return to the hundred plus pages without the storyline falling into the abyss of flatly written mush.
So, instead I choose to write a squishy blog. At least I’ve filled up a page in my document file. Any writing counts, right?
And to go along with this soggy puddle, here’s the first poem I have record of writing, way back at eleven years old.
Trees
Trees grow, very slow. By the sea and by me. They grow in lawns and by ponds. Very slow do they grow.

Turning a New Page in Life

My somber previous post has scared me away from blogging. But there’s now a (leaky) cap on the gushing BP oil well, so that’s a bit of an improvement. Enough said, there isn’t much Pollyanna in me about that issue. But here is a link to a haunting song by Mithril, inspired by the oil spill. The images on the video are all from better days gone by on local beaches. (My three kids each have a picture included.)

This week marks my first attempt at homeschooling my twelve-year-old son. He has a Neuro Immune Dysfunction, which causes autistic behaviors and has been receiving special services through the public school system since he was three. But there is no way I am going to send my sweet, innocent boy into the whirlwind of middle school. I’ve known I was going to homeschool him for the past year—and have been studying all I can on the subject and networking as much as possible for this socially awkward mother—but I spent most of my free time (amid numerous events and sick children) last week charting out an actual weekly planning page—a hybrid of a dozen I’ve looked at—and choosing the first week’s goals. And, I must admit, I also zoned out on Free Cell several times. I wrote absolutely nothing on my WIP and barely logged one journal entry in my notebook.
There is a time and a season for everything, and right now I need to restructure my day to fit it all in. I need to decide if I’ll write in the morning before the kids wake, which has been my exercise time, or attempt writing at night, when my mind is mostly mush, since quiet time might need to be used for one-on-one with the eldest. It’s a good thing Laurie Halse Anderson’s WFMAD is next month—I need some motivation!
Back to the homeschooling experience. Day One=Field trip! Community experiences at the post office, pediatrician’s office, pharmacy, and mall. Walking the mall was the fitness time for the day, too. At home, we took turns reading two books about farmers and pigs, and I let him flip through a third. Our unit study/theme is farms, which is something he loves. He copied twelve spelling words (taken from the farm books) three times and did thirty-five addition problems as part of a math review. And there were no meltdowns—success!
I praised him throughout the day and before bed I asked him if he liked doing work at home. He said yes and smiled. A warm fuzzy!
On a personal note, I’ve finally gotten around to some lighter–but deep–reading.


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Still many more books on my library list and on my own shelves to read.
In honor of the fiftieth anniversary of To Kill a Mockingbird by Harper Lee I’m closing with one of a series of five poems I wrote for a freshman high school report. Each poem had to be from a different character’s perspective. Give me a break, I was only fourteen….
Personal Guide
Watching you grow up, that’s what it’s all about. Teaching you, watching you learn. No matter what you do, I’ll always be here for you.
I was put on Earth to guide you. So come, little children, stay close to my side. It’s a wicked world and I don’t want to lose you to its powerful influence.
But don’t be afraid, I’ll help you.. If there is any doubt in your mind, just stay close, my child. That’s what I’m ere for; a parent is a guide.